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Keep On Keeping On
First it was this, then it was thatand we finally knew it was PDwhen the doctor gave me his final diagnosisI was at the young age of just 43. Twitching and tremors, loss of smelland no more a sense of...
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There’s A Monster In My Pocket
I have a little monster in my pocketthat goes wherever I goHe makes me do things I don’t want to doLike shake and walk real slow I have this little monstera gift, a sort of a blessing you seeI didn’t...
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This Is Parkinson’s
my knees are shakin’ it’s not from being nervous this is parkinson’sstiff muscles abound throughout my aching body this is parkinson’slips quiver, teeth click smile turns into a frown this is...
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Doing Drugs
There’s a pill for my shakingThat I should be takingAnd a pill to help that pill go down. There’s a pill for my legsThat I can’t have with eggsBut I still do if no one’s around.***There’s a pill for...
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Keeping What I’ve Got
Dear Doctor, I’ve come here todayTo get a new body, give my old one awayMy feet – they stumbleThey trip and I fallAnd my brain’s becoming sluggish – but that’s not all. My fingers won’t move the way...
View ArticleChanging My Mind
Dear Doctor, I’ve come here today To get a new body, give my old one away My feet – they stumble They trip and I fall And my brain’s becoming sluggish – but wait! that’s not all. My fingers won’t move...
View ArticleSome Days
Some days are okay some days are not Some days I just get so tired of this little monster following me around telling me I’m a burden telling me I’m losing it telling me I’m not going to get any better...
View ArticleAnother Day on the Journey with Parkinson’s
another day another handful of pills another day masked with pain shaking tripping over my own two feet choking on nothing being told to speak up being told to ‘Smile!’ wanting to scream, “I am...
View ArticleAn Attempt at Ekphrasis
Pure, white petals a symbol of innocence regained, life made new.
View ArticleGrateful
Grateful for life – this life that is hard not can be nor will be but is hard and has been and can be and will be so very hard – but this life I am thankful for this life. Little things make it worth...
View ArticleThe Value of Brokenness
you a fragile piece of pottery knocked over falling to the floor that rises to meet you you pull yourself up another crack to tend to another piece of pride to mend you see the mess you think you’ve...
View ArticleStuck
I sit here feeling stuck in my head in this body stuck not comfortable or in control to write to read to walk to drive to do much of anything but wanting to do something no say in how I feel so life...
View ArticleEating This or That
What do you do when one doctor tells you to not eat one thing and another says it's okay? Exactly... The post Eating This or That appeared first on Parkinson's Journey.
View ArticleLittle Monster Loses
I don’t feel very good. My stomach feels nauseous because my head hurts, and my head hurts because I can’t stop gritting my teeth, which only adds to the stiffness in my neck, which makes my back hurt...
View ArticleFor Better or For Worse
This little monster – I am going to beat it I won’t let it control me while it controls me Sometimes I think about the yesterdays and the tomorrows and I want to cry but I don’t cry but tonight I cried...
View ArticleOh Soul
another day another handful of pills another day masked with pain shaking tripping over my own two feet choking on nothing being told to speak up being told to ‘Smile!’ wanting to scream they think I...
View ArticleMy All in All
In my moment of anxiousness I remember – I hear – be still be quiet and know… that I am God it’s a matter of trust the more i know God is all in all – all He says He is the more i trust… and the more i...
View ArticleSometimes Parkinson’s Gets Me
today i don’t feel like me today i don’t know what i feel like but it isn’t me i’m tired i’m weary i’m running the race and i hope – running it well but i’m tired and i’m weary and this thing – this...
View ArticleI Will Fear No More
the dark of the night in the valley of the shadows of this disease i will fear nothing though it surrounds me invisible relentless from every side still i will fear nothing in the dark of the night...
View ArticleOut of Control
drooling on my pillow, shuffling my feet choking when i do, and when i don’t eat shaking out of my control, my jaw, my lips, my face all of them are quivering, i feel so out of place i’m shaking on the...
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